From Pain To Power — Together.
This is: I am endometriosis.
Introducing:
The Group Project.
This isn’t just community - it’s a collective. Each month, we’ll come together to turn our experiences into action. From sharing our stories, to shaping research, contacting legislators, and pushing for better care, this is where individual voices become collective power. This month, we’re inviting you to take part in a patient-led survey and share your story. This will help us turn lived experience into data and momentum for change.
Who We AreWe built this because we had to.
Because we spent years being dismissed, misdiagnosed, and told our pain was normal. Because endometriosis affects 1 in 10 women and we still can't get a straight answer in the doctor's office. Because that's not okay and we're done waiting for someone else to fix it.
I Am Endometriosis is a movement built by women who have lived this disease. We're bridging the gap between advocacy, education, and research and we're doing it loudly.
This is where your experience gets taken seriously. Where your story has weight. Where you don't have to fight alone.
We're working toward non-profit status because this work deserves infrastructure, not just intention. Policy change, community support, real education. That's what we're building.
If you've ever left a doctor's appointment feeling crazy, dismissed, or defeated, you found your people.
We're not waiting anymore. Neither should you.
Join us on Instagram!
